Monday, September 19, 2011

30 Things- Invisible Illness Week

I'm trying to get back into the the school year routine and place a little more effort into my diabetes management. My A1c went up almost a full point over the 4 months of Summer and it's time to get it back down into the 6-er range. :) Here's 30 Things about my disease that you may not know.

1. The illness I live with is: Type 1 Diabetes

2. I was diagnosed with it in the year: 1988

3. But I had symptoms since: 1987- Ask my Mom about the sleepwalking. Good times.

4. The biggest adjustment I’ve had to make is: Having discernment on which refined carbs are REALLY worth the effort. :)

5. Most people assume: That I did something wrong to get diabetes, like ate the wrong foods or didn't exercise enough.

6. The hardest part about mornings are: Making sure I take care of myself AND still get my kids out the door on time for school.

7. My favorite medical TV show is: Grey's Anatomy. Hands down.

8. A gadget I couldn’t live without is: My pump.

9. The hardest part about nights are: The fear of not waking up from a low blood sugar.

10. Each day I take 1 pills & 0 vitamins: I should take vitamins. I just always forget.

11. Regarding alternative treatments I: Know that there are none for T1D. Only insulin.

12. If I had to choose between an invisible illness or visible I would choose: I love that I can hide diabetes until I’m ready to talk about it. Although I don’t think any illnesses are entirely invisible.

13. Regarding working and career: I am very blessed and fortunate to be my own boss. I am a private piano teacher with many wonderful students. I also substitute teach at a local school in the music department occasionally.

14. People would be surprised to know: I think about diabetes more than 10 times a day. And I've never taken a day off from thinking about it or taking my meds for 25 years.

15. The hardest thing to accept about my new reality has been: N/A I was diagnosed just before my 7th birthday and I have few memories without diabetes.

16. Something I never thought I could do with my illness that I did was: Go on multiple mission trips to third world countries like the Dominican Republic and Mexico.

17. The commercials about my illness: Wilford makes me giggle. Diabeetus. The Type 2 commercials generally drive me crazy because the distinction between Type 1 and Type 2 is rarely made.

18. Something I really miss doing since I was diagnosed is: Pancakes With Syrup.

19. It was really hard to have to give up: I honestly don't feel like I've sacrificed any dreams.

20. A new hobby I have taken up since my diagnosis is: Carb counting. I'm so good at it.

21. If I could have one day of feeling normal again I would: Go hiking and bring all kinds of trail mix with extra m and m's, I'd go swimming under some waterfalls with no cares of being attached to a pump, and I'd eat smores before bed around a fire.

22. My illness has taught me: How many carbs are in everything. What food are really "healthy." I can spot a marketing scam a mile away. "Multigrain" "Low fat" "No preservatives" doesn't mean it's good for ya. :)

23. Want to know a secret? One thing people say that gets under my skin is: “Should you be eating that?" ARG!!!! Don't ever ask me that!

24. But I love it when people: Ask questions and then genuinely listen to the answers. And remember what I tell them. Or ask more questions.

25. My favorite motto, scripture, quote that gets me through tough times is: "I have come that you may have life, and have it to the full." - Jesus He motivates me every day.

26. When someone is diagnosed I’d like to tell them: It gets easier. Some days are hard, but perspective is important.

27. Something that has surprised me about living with an illness is: Diabetes forces me to be very "in tune" with my body. If I'm feeling off in any way, I catch it quickly. :)

28. The nicest thing someone did for me when I wasn’t feeling well was: There's no way to nail down one experience. My parents sacrificed a lot of time, money, and energy to take good care of me. My husband also does many awesome things to keep me healthy and safe. Even my kids get me juice sometimes. :) I'm blessed.

29. I’m involved with Invisible Illness Week because: I thought it'd be fun to share!

30. The fact that you read this list makes me feel: That you are a VERY good friend and you care. Thank you!!

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    6 comments:

    Bruce said...

    Thanks for a great post
    Tips for Dealing with Diabetes

    Sandy said...

    Thanks for sharing. Love you dear friend!

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    Anne said...

    Great 30 DYK list! Really get a sense of the challenges of diabetes, what you have overcame, what you have learned and how you cope with the condition.

    I am working with a well known brand to build a vibrant community to help spread the word about diabetes and a healthy lifestyle. It would be great if you could join our community to help educate, inform and converse with those living with Diabetes.

    If you would like to learn more about this and help us spread the word about diabetes awareness, please send an email to info@atomicreach.com

    Thanks,
    Anne

    kaitem said...

    This was nice to read, "Honestly I don't feel like I have given up any dreams." Thank you for brightening up my day.

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